Latest Episodes
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Genetic Testing – Genome Sequencing A-Z for Mitochondrial Disease - Christine Stanley - 12/6/19
Genetic Testing – Genome Sequencing: A-Z for Mitochondrial Disease
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2020 Mito Town Hall - 1/10/20
The annual town hall meeting is MitoAction’s way of kicking off the new year by sharing all that we have in store for the...
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The Power of Rare Disease Advocacy - Shannon vonFelden - 2/7/20
“The Power of Rare Disease Advocacy” Advocates are the key to creating real change. Learn the power that you as a patient and caregiver...
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Understanding the New Recommendations on the Safety of Drug Use in Patients with a Primary Mitochondrial Disease - Dr. Amel Karaa - 2/28/20
“Understanding the New Recommendations on the Safety of Drug Use in Patients with a Primary Mitochondrial Disease” Clinical guidance is often sought when prescribing...
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Ins and Outs of Social Security - Annette Hines - 4/3/20
Join MitoAction and Annette Hines on April 3, 2020 for our April Monthly Mito Expert Series. Ins and Outs of Social Security Navigating Supplemental...
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Q&A - Impacts of COVID-19 on FAOD's - Dr. Jerry Vockley - 4/7/20
Join MitoAction and Dr. Jerry Vockley from UPMC Children’s Hospital of Pittsburgh for a Q & A to discuss your questions and concerns about...