The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We’ll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease.
The following will participate in the meeting!
In May 2023, Dr. Boles and his research group published a scientific paper on the results of 50 people that had either whole exome...
Join us with Dr. Richard Boles as we learn more about how to interpret genetic test results. The landscape today for a mitochondrial disease...
A conversation with the public policy team for the National Organization for Rare Disorders (NORD). Topics of discussion will include: Current federal and state...