When you have a child with a rare disease, who sees so many different doctors, it can feel challenging to know how your pediatrician fits into the picture! How do you use this very special doctor to help you navigate your questions, collaborate with other doctors, and move through the everyday life of navigating a rare disease. Join Dr. Daniel Nale as he provides practical tips and advice for patients and clinicians, after walking with an FAOD family from infancy through adulthood.
Are you OVERWHELMED? This time of year, we look forward to the joy, excitement, and fun of the holiday season: Thanksgiving, Hanukkah, Christmas, Kwanzaa,...
Is Exercise a New Year’s Resolution for People Affected by Mitochondrial Diseases? Learn about how you can most effectively incorporate exercise into your daily...
Teen Interview with Harrison
