Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease. Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child’s needs to care providers as well as knowing your family’s rights to extended school year services can make a huge difference in your child’s summer experience.
Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.
Questions to be answered include:
To view accompanying slides, click here.
Join MitoAction and Dr. Frank Kendall to discuss Direct to Consumer genetic testing (DTC testing) in detail. Some talking points will include: Strengths and...
Do you or your child struggle with toe walking? Are you curious about why it occurs and where the concerns lie? Is toe walking...
Dr. Mark Korson from Tufts Floating Hospital for Children gives a "crash course" in interpreting lab values! Most patients with mitochondrial disease have faced...