Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

October 21, 2020 01:03:00
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016
MitoAction Expert Series
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

Oct 21 2020 | 01:03:00

/

Show Notes

Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease.  Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child’s needs to care providers as well as knowing your family’s rights to extended school year services can make a huge difference in your child’s summer experience.

Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.

Questions to be answered include:

To view accompanying slides, click here.

Other Episodes

Episode 0

October 21, 2020 01:22:34
Episode Cover

NORD Public Policy Team - 3/4/2016

A conversation with the public policy team for the National Organization for Rare Disorders (NORD). Topics of discussion will include: Current federal and state...

Listen

Episode 0

August 03, 2020 00:57:39
Episode Cover

Infection, Immunity, & FAOD - Dr. Peter McGuire - 7/24/20

Friday, July 24Auditorium – 2:00pm – Infection, Immunity and FAOD About the Speaker Dr. Peter McGuire received his MBBCh (with Honours) from the Royal...

Listen

Episode

September 03, 2026 00:54:52
Episode Cover

Understanding the Current Landscape of Insurance Coverage for Rare Diseases

As our community celebrates the approval of two new therapies, understanding how to access coverage successfully has never been more important. In partnership with...

Listen