Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

October 21, 2020 01:03:00
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016
MitoAction Expert Series
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

Oct 21 2020 | 01:03:00

/

Show Notes

Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease.  Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child’s needs to care providers as well as knowing your family’s rights to extended school year services can make a huge difference in your child’s summer experience.

Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.

Questions to be answered include:

To view accompanying slides, click here.

Other Episodes

Episode

November 21, 2025 01:06:50
Episode Cover

Serial Casting and Toe Walking

Do you or your child struggle with toe walking? Are you curious about why it occurs and where the concerns lie? Is toe walking...

Listen

Episode

May 18, 2022 01:29:37
Episode Cover

Mito Supplement Therapy

What is "the Mito Cocktail"? Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease...

Listen

Episode 0

August 25, 2021 00:59:38
Episode Cover

Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally

Join MitoAction, Laura Pisani-Betancourt and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, July 9th, 2021 at 12:00pm EST for our monthly expert series presentation!...

Listen