Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

October 21, 2020 • 01:03:00
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016
MitoAction Expert Series
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

Oct 21 2020 | 01:03:00

/

Show Notes

Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease.  Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child’s needs to care providers as well as knowing your family’s rights to extended school year services can make a huge difference in your child’s summer experience.

Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.

Questions to be answered include:

To view accompanying slides, click here.

Other Episodes

Episode

March 12, 2025 • 01:32:19
Episode Cover

Extensive DNA Sequencing in Cyclic Vomiting and Chronic Fatigue: Implication for Genetic Testing and Personalized Treatment Options

In May 2023, Dr. Boles and his research group published a scientific paper on the results of 50 people that had either whole exome...

Listen

Episode

June 22, 2022 • 00:52:39
Episode Cover

Muscle Biopsy Testing - 7/9/2010

For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease.  Muscle biopsy is costly, it...

Listen

Episode 0

July 07, 2020 • 01:18:00
Episode Cover

Medical Homes - Kristi Wees - 8/5/2016

Kristi Wees discusses medical homes for Mito patients. Topics include:   The importance of a medical home for a mitochondrial disease patient. Definition of a...

Listen