Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

October 21, 2020 01:03:00
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016
MitoAction Expert Series
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016

Oct 21 2020 | 01:03:00

/

Show Notes

Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease.  Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child’s needs to care providers as well as knowing your family’s rights to extended school year services can make a huge difference in your child’s summer experience.

Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.

Questions to be answered include:

To view accompanying slides, click here.

Other Episodes

Episode 0

June 08, 2020 01:01:43
Episode Cover

Help is on the Way - Mary Summers - 9/13/19

Mitochondrial Disease can impact in many ways both an individual and everyone who cares for them: Health care needs Emotional support Basic needs Community...

Listen

Episode 0

October 21, 2020 NaN
Episode Cover

Fatty Acid Oxidation Disorders - Dr. Jerry Vockley - 2/5/2016

What are fatty acid oxidation disorders, and why are they related to mitochondrial disorders? Additional areas of discussion include: Do patients with mitochondrial defects...

Listen

Episode

March 09, 2025 01:01:48
Episode Cover

Expert Series: Expanded Access and Compassionate Use of Experimental Therapies

 “Expanded Access” and “Compassionate Use” are terms that are utilized in our rare disease community, but what do they mean? How do patients learn...

Listen