Getting Connected with MitoAction Mobile - MitoAction & Karen - 11/1/19

June 08, 2020 • 01:05:59

Show Notes

Join MitoAction’s CEO, Kira Mann and Karen’s CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform.  This tool will help you manage your day-to-day with mito and help us learn more about the daily challenges you face living with this rare disease.

Previous Episode
Next Episode

Other Episodes

Episode

April 13, 2022 • 01:01:12
Episode Cover

Special Needs Planning - 3/9/09

lanning for your future with Mito… a workshop for parents & adult patients Monthly International Teleconference Outreach “It feels like each day is all...

Listen

Episode 0

August 25, 2021 • 00:59:38
Episode Cover

Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally

Join MitoAction, Laura Pisani-Betancourt and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, July 9th, 2021 at 12:00pm EST for our monthly expert series presentation!...

Listen

Episode

November 21, 2025 • 01:20:23
Episode Cover

Understanding Rare Genetic Variants: What Do My Results Really Mean?

When a genetic variant is shared by only a handful of individuals worldwide, what does it mean for diagnosis, treatment, and research? In this...

Listen