Join MitoAction’s CEO, Kira Mann and Karen’s CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform. This tool will help you manage your day-to-day with mito and help us learn more about the daily challenges you face living with this rare disease.
It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider...
“The Power of Rare Disease Advocacy” Advocates are the key to creating real change. Learn the power that you as a patient and caregiver...
Siblings of children with disabilities play important roles in their families, and often experience similar concerns and opportunities as parents. This session will present...