The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
Organizations share what they have planned for the next 12 months. The annual town meeting is our way of kicking off the new year...
Talking points include: What are Standards of Care and why does the Mito community need such standards? Review the MMS’s Standards of Care for...
Do you or your child struggle with toe walking? Are you curious about why it occurs and where the concerns lie? Is toe walking...
