The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
Kristi Wees discusses medical homes for Mito patients. Topics include: The importance of a medical home for a mitochondrial disease patient. Definition of a...
Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN Adult patients, caregivers, parents of affected...
Talking points include: What are Standards of Care and why does the Mito community need such standards? Review the MMS’s Standards of Care for...
