The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
“Expanded Access” and “Compassionate Use” are terms that are utilized in our rare disease community, but what do they mean? How do patients learn...
Cheryl M. Clow RN discusses Getting Through the Day with Mito: Treatments, Supplements, and Humor. Topics of discussion include: Patient care considerations and making...
The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the...
