The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
Talking points include: What are Standards of Care and why does the Mito community need such standards? Review the MMS’s Standards of Care for...
Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide...
Mitochondrial Disease can impact in many ways both an individual and everyone who cares for them: Health care needs Emotional support Basic needs Community...
