The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
Dr. Darius Adams, a clinical geneticist, discusses molecular diagnostic testing for mitochondrial disorders. Dr. Adams, Medical Director of the Goryeb Children’s Hospital Genetics and...
What is the mitochondrial disorder PDCD? PDCD is an abbreviation for pyruvate dehydrogenase complex deficiency, a genetic mitochondrial disorder in children which is frequently...
Update by Cristy Balcells about ways to get involved and spread awareness.
