The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.
The annual town hall meeting is MitoAction’s way of kicking off the new year by sharing all that we have in store for the...
Siblings of children with disabilities play important roles in their families, and often experience similar concerns and opportunities as parents. This session will present...
When you have a child with a rare disease, who sees so many different doctors, it can feel challenging to know how your pediatrician...
