Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally

August 25, 2021 00:59:38
Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally
MitoAction Expert Series
Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally

Aug 25 2021 | 00:59:38

/

Show Notes

Join MitoAction, Laura Pisani-Betancourt and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, July 9th, 2021 at 12:00pm EST for our monthly expert series presentation!

On this webinar, Ultragenyx will discuss the development of its LC-FAOD Disease Monitoring Program (DMP), which includes both an in-clinic study and an online study that are expected to launch in 2021. Participants will learn about the studies, including how insights from the LC-FAOD community have informed the DMP’s research goals, how the DMP aims to change the future of LC-FAOD research and disease management, and Ultragenyx’s plans to launch the DMP.

*This webinar is intended for U.S. members of the MitoAction community*

Other Episodes

Episode

April 12, 2022 00:29:14
Episode Cover

Teen Interview with Morgan

Teen Interview with Morgan

Listen

Episode

May 19, 2022 01:44:50
Episode Cover

Autism, Mito and Oxidative Stress

Join us for an informative discussion with Dr. Richard Frye, Director of Autism Research and Director of the Autism Multispecialty Clinic at Arkansas Children's...

Listen

Episode

June 22, 2022 01:05:25
Episode Cover

Coping with Mitochondrial Disease - 10/5/2009

MitoAction welcomes psychologist Carole Slipowitz PhD and Tufts Metabolism clinic nurse coordinator Maggie Orr RN M.Ed to discuss the challenges of dealing with a...

Listen