Teen Interview with Reed

Join MitoAction and board-certified family physician and Adjunct Associate professor of medicine at Georgetown University, Dr. Marguerite Duane, to explore the impact of the...

 “Expanded Access” and “Compassionate Use” are terms that are utilized in our rare disease community, but what do they mean? How do patients learn...

“The Power of Rare Disease Advocacy” Advocates are the key to creating real change.  Learn the power that you as a patient and caregiver...