Join us this month with Dr. Fran Kendall from Emory University Department of Human Genetics as we dig deeper into confusion surrounding two components of the “Mito Cocktail”: Coenzyme Q10 and Creatine.
A long-time advocate and clinician for mitochondrial disease patients, Dr. Kendall began the Mitochondrial Disorders Program at Boston Children’s Hospital 18 years ago. Since that time, she has been involved in direct patient care as well as diagnostics and biochemical genetics research and currently follows patients through her Atlanta practice.
“Expanded Access” and “Compassionate Use” are terms that are utilized in our rare disease community, but what do they mean? How do patients learn...
Kristi Wees discusses medical homes for Mito patients. Topics include: The importance of a medical home for a mitochondrial disease patient. Definition of a...
Many children and adults with mitochondrial disease experience significant gastrointestinal or digestive issues as part of their daily disease challenges. When considering the pros...