Understanding the Current Landscape of Insurance Coverage for Rare Diseases

As our community celebrates the approval of two new therapies, understanding how to access coverage successfully has never been more important. In partnership with the Little Hercules Foundation and its founder, Kelly Maynard, this special MitoAction Expert Series will break down today’s evolving insurance landscape, including Medicaid, Medicare, ACA protections, and pharmacy vs. medical coverage, while also taking you behind the scenes to understand how claims are processed, how coding and prior authorizations impact access, and how to read and respond to an Explanation of Benefits. This practical, empowering session will equip patients and caregivers with the knowledge needed to anticipate barriers, avoid common missteps, and confidently advocate for timely access to treatment