Join MitoAction in an informative and exciting discussion with disability advocate and attorney Valerie Powers Smith as she brings to light issues regarding health care insurance and how to maximize coverage (e.g., understanding your plan, how to get things covered with appropriate medical necessity documentation, and appeals). She will also discuss other disability care issues, such as Medicaid, SSI benefits and managing the disabled person’s assets/income for future and continued eligibility; as well as managing parental estate concerns with proper estate planning and special needs trusts.
Guest speaker and attorney Valerie Powers Smith took patients and parents on a crash course in the area of disability law. “If I could emphasize one thing to all people with mitochondrial disease, it would be the importance of proactive planning, and understanding the basics about everything from your estate plan to your insurance benefits.”
There are so many misunderstandings and misconceptions of genetic testing. Dave will attempt to clarify these issues, and provide tools to empower patients to...
To work or not to work...that is the question Many adults with mitochondrial disease face a difficult decision about how to financially support themselves...
Teen Interview with Annalise