Join MitoAction in an informative and exciting discussion with disability advocate and attorney Valerie Powers Smith as she brings to light issues regarding health care insurance and how to maximize coverage (e.g., understanding your plan, how to get things covered with appropriate medical necessity documentation, and appeals). She will also discuss other disability care issues, such as Medicaid, SSI benefits and managing the disabled person’s assets/income for future and continued eligibility; as well as managing parental estate concerns with proper estate planning and special needs trusts.
Guest speaker and attorney Valerie Powers Smith took patients and parents on a crash course in the area of disability law. “If I could emphasize one thing to all people with mitochondrial disease, it would be the importance of proactive planning, and understanding the basics about everything from your estate plan to your insurance benefits.”
As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal...
Join us this month to take a big picture look at agents that are toxic or potentially harmful to the mitochondria. Dr. Katherine Sims...
“The Power of Rare Disease Advocacy” Advocates are the key to creating real change. Learn the power that you as a patient and caregiver...