Latest Episodes
0
PTC743 (Vatiquinone) for the Treatment of Mitochondrial Disease With Associated Epilepsy - Matt Klein & Francesco Bibbiani - 11/6/2020
Join MitoAction and Matthew Klein and Francesco Bibbiani from PTC Therapeutics for our November Mito Expert Series presentation. About the Speakers Matthew B. Klein,...
0
2016 Mito Town Meeting - 1/8/2016
The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months....
0
Fatty Acid Oxidation Disorders - Dr. Jerry Vockley - 2/5/2016
What are fatty acid oxidation disorders, and why are they related to mitochondrial disorders? Additional areas of discussion include: Do patients with mitochondrial defects...
0
NORD Public Policy Team - 3/4/2016
A conversation with the public policy team for the National Organization for Rare Disorders (NORD). Topics of discussion will include: Current federal and state...
0
Incapacity Planning and Guardianship - Annette Hines & Mark Worthington - 3/31/2016
As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal...
0
Mitochondrial Medicine Society Update (2016) - Dr. Amy Goldstein - 4/3/2016
Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society. Areas of discussion include: Transplantation in Mito patients Stroke protocol for MELAS Standards...