Latest Episodes
0
NORD Public Policy Team - 3/4/2016
A conversation with the public policy team for the National Organization for Rare Disorders (NORD). Topics of discussion will include: Current federal and state...
0
Incapacity Planning and Guardianship - Annette Hines & Mark Worthington - 3/31/2016
As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal...
0
Mitochondrial Medicine Society Update (2016) - Dr. Amy Goldstein - 4/3/2016
Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society. Areas of discussion include: Transplantation in Mito patients Stroke protocol for MELAS Standards...
0
Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016
Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide...
0
The Overlap Between Mitochondrial Disorders and Disorders of Neurotransmitter Metabolism - Dr. Irina Anselm - 10/2/20
Join MitoAction and Dr. Irina Anselm for our October Mito Expert Series presentation titled, “Overlap Between Mitochondrial Disorders and Disorders of Neurotransmitter Metabolism”. This...
1
Mito Community Call with Kyle of the Two Disabled Dudes
Join MitoAction and featured guest Kyle Bryant of the Two Disabled Dudes for a community call to encourage and inspire you as we kick...