Join MitoAction and featured guest Kyle Bryant of the Two Disabled Dudes for a community call to encourage and inspire you as we kick off Mitochondrial Disease Awareness Week! The topic of the call will be: Life Is About How We React – including themes of overcoming obstacles, people-first language, and self image. There will be a Q&A following the discussion.
About Kyle
At age 17 Kyle Bryant was devastated when he was diagnosed with a rare, debilitating, life-shortening disease called Friedreich’s Ataxia. Walkers, wheelchairs, vision loss, hearing loss and a pre-mature death were all in his future.
However, Kyle took this bleak situation and turned it into an opportunity to provide hope to the FA community and empower others, riding his recumbent trike thousands of miles and raising millions for FA research.
Now, Kyle shares his outlook about how to turn adversity into opportunity in his keynote speeches. Kyle is sure to change perspectives and inspire your audience to action.
Kyle graduated from University of California at Davis with a degree in Civil Engineering. Worked 5 years as an engineer before finding his calling through cycling and spreading empowerment to others. As the founder/director of rideATAXIA for the Friedreich’s Ataxia Research Alliance (FARA), Kyle and his team produce family friendly bike rides across the country to empower those with FA and raise funds for research. rideATAXIA currently has 6 locations nationwide and has raised over $7 million for FA research since 2007. Kyle’s favorite place to be is on his Catrike and he is probably on the road or bike trail at this very moment.
Dr. Darius Adams, a clinical geneticist, discusses molecular diagnostic testing for mitochondrial disorders. Dr. Adams, Medical Director of the Goryeb Children’s Hospital Genetics and...
Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide...
Teen Interview with Annalise