The annual town hall meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We’ll hear from organizations and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease.
We’ll hear from the following organizations:
Friday, July 24Auditorium – 1:10pm – INFORM & FAOD Community Update About the Speaker: Cleveland Family Endowed Pediatric Research, School of MedicineProfessor of Human...
When you have a child with a rare disease, who sees so many different doctors, it can feel challenging to know how your pediatrician...
Despite advances in newborn screening and treatment of fatty acid oxidation disorders, patients with very-long-chain acyl-CoA dehydrogenase deficiency (VLCADD) continue to suffer from heart...