The annual town hall meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We’ll hear from organizations and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease.
We’ll hear from the following organizations:
Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN Adult patients, caregivers, parents of affected...
There was much discussion about current research in FAODs at our recent International Metabolic conference last month. Reneo Pharmaceuticals recently released positive results from...
A conversation with the public policy team for the National Organization for Rare Disorders (NORD). Topics of discussion will include: Current federal and state...