Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN
Adult patients, caregivers, parents of affected children - all of us face the same challenge. How do we get our team on board? How do we get the help we need from doctors, teachers, nurses, therapists? How do we find ways to validate symptoms that are slippery or difficult to identify? And how do we do this in a way that brings positive results and cooperation instead of provoking stress and hard feelings?
Join MitoAction and board-certified family physician and Adjunct Associate professor of medicine at Georgetown University, Dr. Marguerite Duane, to explore the impact of the...
To work or not to work...that is the question Many adults with mitochondrial disease face a difficult decision about how to financially support themselves...
Do you or your child struggle with toe walking? Are you curious about why it occurs and where the concerns lie? Is toe walking...