Teen Interview with Olivia
“The Power of Rare Disease Advocacy” Advocates are the key to creating real change. Learn the power that you as a patient and caregiver...
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting...
In May 2023, Dr. Boles and his research group published a scientific paper on the results of 50 people that had either whole exome...