Latest Episodes

Mito Town Meeting
The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the...

Grief and Mito
The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear,...

Transition Tips for Patients and Parents
Join Dr. Jordan Kemere as she discusses different components of healthcare transition including finding adult physicians, insurance changes, and transitioning to adult life. She...

Navigating the Financial Minefield of Genetic Testing
There are so many misunderstandings and misconceptions of genetic testing. Dave will attempt to clarify these issues, and provide tools to empower patients to...

LCHADD Retinopathy
The underlying cause of LCHADD retinopathy is not fully understood. This presentation will look at the research that identifies the cell in the eye...

Cardiac Complications with LCHADD
Cardiac complications were often identified in symptomatic infants and children before newborn screening. Cardiac dysfunction can re-emerge or present for the first time during...